A post for Jesse!

2:46 PM

Jiselle Johnson - December 2013

Blogging is something I do for fun and to entertain myself (and others).  This blog post it different.

Still smiling after radiation!
Jesse's parents and grandparents (my cousins, aunt and uncle) are raising money and awareness.  They want to provide Jesse with the best life they can while for however long they are blessed to have her.  They also want to find a cure so that other families won't have to suffer from this devastating disease.

Your support is greatly appreciated!

Jesse at dinner with family 1-3-14
Even though it's rare to survive DIPG, here are a few kids who have!


DIPG Facts:

DIPG (Diffuse Intrinsic Pontine Glioma) is a disease which strikes at the heart of childhood and it is a disease in desperate need of a cure. And at the same time, there may be no better place to start the search for a homerun cure for cancer.  

Consider the following:
  • Lung cancer has a survival rate of 80% if caught in the early stages to less than 5% if caught in stage 5.
  • Breast cancer has typically an 80-90% survival rate.
  • Leukemia has a 48% survival rate.
  • Less than 10% of DIPG children will live longer than 18 months from diagnosis. Survival is even more rare.
DIPG affects the pons portion of the brainstem, rendering nervous system function impossible. Symptoms include double vision, inability to close the eyelids completely, dropping one side of the face, and difficulty chewing and swallowing. Unfortunately these symptoms usually worsen rapidly because the tumor is rapidly growing.
DIPG, for all its difficulties, presents an opportunity for all forms of cancer. It is one of the most resistant of all cancers to chemotherapy treatments; it affects primarily children (whose treatment has historically led to innovations in many other forms of cancer), and with a "dismal" prognosis, alternatives are few. Put together, these obstacles offer researchers a chance to revolutionize cancer research and prevention. It is even suggested that a cure to DIPG might result in a cure for almost every other type of cancer. For this reason, the cure starts now.
The Cure Starts Now strives to generate the resources necessary for doctors to study DIPG and implement the findings in hope of curing DIPG, and hopefully all cancers.

 To help find a cure visit:  The Cure Starts Now.org.

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  1. Replies
    1. Jessie passed away a few days after Thanksgiving this year. She will be missed.

  2. Jesse is doing well. Her condition is stable and her hair is growing back!

    She received a wish from the make a wish foundation. She was able to go to Disney and be a princess!

  3. Jesse was diagnosed the day after Thanksgiving 2013. I saw her yesterday at Thanksgiving and she's doing great! Her condition remains stable and she's full of fire. Her daddy definitely had his hands full trying to keep track of her and her little sister yesterday.

    I'm told that she remains stable and (for now) life is back to normal.